Thursday, March 6, 2014

Evie 9 Months!

At 9 months Evie weighs 22 lbs 5 oz and is 29 inches long! She is in the 90th percentile for weight and off the charts in height. She hasn't gained weight since she was 5 months old but our doctor isn't concerned because at this point she is just getting back on the curve instead of being off of it :)

Evie is still eating 6oz bottles and food for breakfast, lunch and dinner. We have graduated to puffs finally and she is tolerating them well! She even had a french fry the other night and was able to eat that without choking!!

We had a bit of a scare starting on February 9th when Evie seemed to have had a small virus but it has really knocked her on her tail and we are still watching to see if there could maybe be something else going on. Since Feb. 9th Evie has progressively refused to sit up, crying out when we force her to, has a bobble head that she can't seem to get control of and has just been overall regressing in physical therapy. After a trip to the ER that included CT scan and head x-rays we determined her shunt was working great, huge relief! Then the next week we got an x-ray of her tummy which showed she was backed up (common for SB babies). We got her cleared out but she was still having some lingering effects. At a physical therapy session our therapist was really worried about the regression and Evie's apparent pain from stretches so she called our SB specialists at Cardinal Glennon and we had an appointment with Orthopedic Surgery. That appointment was less than successful and they told us she was fine. We are still seeing some issues with Evie but over the past week she has been starting to get back to where she was. We still aren't there yet, so essentially we have lost about a month in progress with physical therapy which makes me sad but just as long as she's getting better, that's all that matters.

Evie got fitted with her very first pair of AFOs (ankle foot orthotics)! With the AFOs Evie is able to bear all of her weight and even stand in her stander for 30 minutes at a time! She loves to be upright and stand next to a shelf and play!
Evie getting molded for her braces!
It took us 4 stores but we finally found a tennis shoe that was light weight and laced all the way down but was small enough for her feet! Aren't they cute?

And of course a princess needs her orthotics blinged out! White was so boring!

Check her out!!


Today Evie has her swallow study to see if we can figure out what is going on once she swallows the food. There is a possibility that she is still refluxing which could be a cause of her constant illness. I am hoping this gives us a better insight as to what could be the root of some of the issues we are dealing with. Sometimes being a mom to a child with Spina Bifida is hard! You have to decipher what is spina bifida related and what is just her being a normal baby...we are still trying to navigate that and figure her out.

Evie loves to babble all day long. She can say "ma-ma" "da-da" "ba-ba" and has recently started blowing raspberries which is so cute! She loves to laugh at her brother and has recently started getting on his nerves :) She likes to have whatever he has and let's just say we are learning some wonderful lessons in sharing at the Morgan house :)

Evie can scoot backwards and sit up nice and tall and play with toys! She is trying so hard to figure out  how to crawl forward and brings her legs up but then can't figure it out. She is so darn cute and determined! Evie trying to crawl HERE

She wears 12 month size clothes and size 4 diapers. She loves her jewelry and diamonds are her favorite. We are so blessed to be her parents and look forward to all she will accomplish. 

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