At 6 months Evie weighs a WHOPPING 22 lbs 7oz and is 27 inches long! That is off the charts in both height and weight. Her head is in the 89th percentile which means she is doing good!
She eats 7-8 ounces every 3-4 hours. We started on baby food and she eats a veggie after her 5pm bottle. We will start food with breakfast next week so she will get a fruit then! Evie's "school" has been so wonderful with our ever changing feeding regimen. It is such a guessing game with her getting everything figured out. We started weaning her off of the cereal in her bottles because she isn't spitting up anymore. In order to get her off the prescription medicine we first have to make sure she is ok with just plain milk. We have her all the way down to just 1/2 teaspoon in each bottle and that is just so she doesn't choke on the flow of the bottle. We have her on a size 2 nipple but it's still a little fast and a level 1 is too slow....oh the drama. So this is our compromise.
We are still having a few bowel issues. We can't quite get her figured out. Too much Miralax, not enough, she needs it now she doesn't. Good grief! We now give Evie 1/4 tsp once a day in her morning bottle. We will see how long that lasts for. Hoping she can figure out her poo and not need the Miralax.
Evie is still sleeping great. From about 7pm - 6am. Can't complain there. She has always been a great sleeper and for that I am thankful!
She got fitted with her foot brace on her left foot to correct her Metatarsil Adductus - see this post about that! She doesn't love her brace so much but tough luck sister, we need to correct your foot early on! She developed a pretty big pressure sore early on so she couldn't wear it for a few days. We had it adjusted and another strap added and now we are in business :)
Susan, Evie's amazing physical therapist, is impressed with her progress so far! She can sit up unassisted for about 6 minutes and then she has to put her hands on her knees to balance. She can push all the way up on her hands and lock her arms and starts to pull her legs up. Hoping she figures out that is how she can gain mobility here soon :) (I know remind me in a few months and I will wish she didn't follow me everywhere!) She is physically capable of rolling over both ways but due to her weight, we think, she chooses to stay put most of the time. She isn't quite able to bear all of her weight yet. She has a few spurts where she will bear some weight on her legs. I am not really sure why or what this is. Maybe she just isn't strong enough yet? We see PT again on Saturday and I will ask about it then...maybe it's just delayed? Not sure...hoping we can strengthen her up to start bearing more weight on those fat little legs of hers ;)
Gavin continues to be obsessed with his baby sister. He loves talking to her, says "Good morning Evie" every single morning, plays with her and likes to "help" her play with her toys. He is a huge help and loves to run little errands around the house for us to get things. We are so thankful he loves her so much and we have avoided the jealousy issues so far!
We continue working with her daily so that she continues to meet her age milestones. We are incredibly blessed with caregivers that do wonderful work with her during the day and a physical therapist that is out of this world amazing. At this rate, Spina Bifida doesn't stand a chance.
We go to SB clinic on December 18th but that is to just check in with the Urologist, PT and Orthotic people. Her next Neuro appointment isn't until March (I think) and we will see the Orthopaedic doctor at that time too to see what he thinks about mobility in the future and any possible interventions that she would need.
God is good, all of the time. We are so blessed and don't take any of these blessings for granted. To Him be the glory!